In the spirit of slumber parties, I want to have a sleepover and invite only narcoleptics - Jarod Kintz
image by: More Than Tired
Narcolepsy. Though many recognize the word, relatively few of us know what it really means. And why should we? As far as sleep disorders go, it's not nearly as common as insomnia or apnea. And let's face it, it doesn't sound very sexy either. (As one patient put it, "Combining 'narc,' and 'olepsy,' sounds like an epileptic narcotics agent to me.") Actually, the term literally refers to sleep attacks. But it's so much more complex and interesting than that.
Why should we all know more about narcolepsy? First, many if not most persons with narcolepsy (PWN) remain undiagnosed and, therefore, are not receiving the treatment and support they need. The majority of PWN that I've seen in…
Narcolepsy. Though many recognize the word, relatively few of us know what it really means. And why should we? As far as sleep disorders go, it's not nearly as common as insomnia or apnea.
The goal of More Than Tired is to raise awareness of narcolepsy and its symptoms. The five major symptoms of narcolepsy are excessive daytime sleepiness (EDS), cataplexy, sleep disruption, sleep paralysis, and hypnagogic hallucinations. Narcolepsy is often misunderstood, with about 50% of those affected being undiagnosed.
Contrary to common beliefs, people with narcolepsy do not spend a substantially greater proportion of their time asleep during a 24-hour period than do normal sleepers. In addition to daytime drowsiness and uncontrollable sleep episodes, most individuals also experience poor sleep quality that can involve frequent waking during nighttime sleep, and other sleep disorders.
Narcolepsy UK (Registered Charity No. 1144342) is an association of people with narcolepsy, their relatives and others interested in improving their lot. Its registered objects are the benefit, relief and aid of persons suffering from narcolepsy.
I love my husband but I hate his illness. I'm trying to learn how to help my family thrive despite my husband's narcolepsy, and I hope this blog also helps anyone else living under the weight of this disease.
Wake Up Narcolepsy is a nonprofit organization dedicated to speeding narcolepsy diagnosis through greater awareness and funding medical research to find a cure.
We are the people living with Narcolepsy who CARE* for the people living with Narcolepsy.
NUVIGIL can help improve wakefulness in patients with excessive sleepiness due to shift work disorder.
Crazy mum with a dysfunctional hypothalamus...Narcolepsy affects me far more than I have previously admitted. I don't like to be defined by it and continually work hard to keep my weak times away from others eyes.
Narcolepsy and cataplexy information and resources.
I am a narcolepsy spokesperson and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Living in Los Angeles and speaking across the country, I love opening people's hearts and minds to the real narcolepsy, a neurological disorder affecting 3 million people worldwide. Thanks for stopping by!
Contrary to what some people believe, narcolepsy isn't related to depression, seizure disorders, fainting, simple lack of sleep or other conditions that may cause abnormal sleep patterns. Narcolepsy is a chronic condition for which there's no cure. However, medications and lifestyle changes can help you manage the symptoms. Support from others — family, friends, employer, teachers — can help you cope with narcolepsy.
Narcolepsy is a chronic disease of the central nervous system. The symptoms include excessive daytime sleepiness (EDS), loss of muscle tone (cataplexy), distorted perceptions (hypnagogic hallucinations), inability to move or talk (sleep paralysis), disturbed nocturnal sleep, and automatic behavior.
Narcolepsy is a rare, long-term brain disorder that causes a person to suddenly fall asleep at inappropriate times.
Many people with narcolepsy also have cataplexy. This name comes from the Greek 'down'. In cataplexy you have sudden loss of control over some of your muscles. There are other symptoms of narcolepsy including seeing, hearing or feeling something that is not really there (having hallucinations) as you are falling off to sleep or waking up from sleep.
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