Nystagmus

The biggest lesson I’ve learnt is not to be embarrassed if you need help and not to be scared to ask – Wil Maudsley

Nystagmus

image by: Nystagmus Network
     

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Can people see past my wobbly eyes?

It’s a traumatic experience for parents when their baby is diagnosed with an unknown condition. Mine didn’t know what to do when the doctor told them that their little girl had nystagmus; but then what could they actually do?

It’s just one of those things. Yet it didn’t seem like that at the time. Even though my condition was congenital, the initial reaction wasn’t to consider that I wouldn’t know any different. Consequently they had no idea what to expect. Would it prevent me from leading a normal life and making friends?

I was brought up not to consider my visual impairment a disability, nor a negative characteristic that limited my activities. At a younger age I couldn’t…

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Last Updated : Wednesday, July 10, 2019