Type I
Always remember that kids with diabetes are still kids - Jeff Hitchcock, founder, Children with Diabetes
image by: Diabetes Research Institute
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8 things I wish people understood about having Type 1 diabetes
I was 25 and in the middle of my second year of law school when I started feeling tired, thirsty, and hungry. I had blurry vision all the time. I was lucky — I mentioned this to a friend, and she said whenever she complained about her eyes her dad tested her blood sugar, because that's how he got diagnosed with diabetes. I had a family history of both types, but I figured I was too old for Type 1 and too young and too much of a gym rat for Type 2. Still, I went to student health.
I explained my typical diabetes symptoms and family history to a person we will call "Helpful Nurse." Helpful Nurse decided the best immediate course of action would be to gaslight me aggressively…
Resources
A Diabetic Dream
Can synthetic biology finally cure the autoimmune disease?
A step by step guide to perfection
How to be the perfect parent to a child with Type 1 Diabetes...
Controversial researcher’s diabetes vaccine causes improvement in small study
An experimental therapy for type 1 diabetes, widely derided by mainstream diabetes researchers, lowered blood sugar levels to near normal, a small, ongoing trial found. Patients in the trial, whose blood sugar levels have remained near normal for five to eight years, take about one-third less insulin than they did before, reducing their risk of hypoglycemia, in which insulin lowers blood sugar to dangerously low levels. The experimental treatment, a decades-old generic vaccine for tuberculosis called bacillus Calmette-Guérin (BCG),
New Therapy Could Reverse Type 1 Diabetes In Humans And Dogs
The Purdue and IU team removed the need for transplanting in the liver by mixing mouse islets with the collagen solution. The solution solidifies upon injection just under the skin, and the body recognizes the collagen and supplies it with blood flow to exchange insulin and glucose.
The High Price of Insulin Is Literally Killing People
For me, the most important invention of the last 30 years was the insulin pen, invented exactly 30 years ago. The pens are much more portable, don't require refrigeration after they are opened, and are virtually unbreakable. They are expensive as hell, even with insurance, but when I can get them, insulin pens allow me so much more freedom than insulin in vials.
This Is The Shocking Cost Of Type 1 Diabetes
Type 1 diabetes is all consuming. The stigma of misinformation. The inescapable quest for medical perfection. The 65,000-plus injections per lifetime (a lifetime which tends to be slashed 12 years from average as soon as you’re diagnosed). The autoimmune disease takes hold of young bodies and never lets go. Without reason. And with no warning of the ever-expanding costs.
Type 1 Diabetes Is No Longer Just for Kids
The disease, once assumed to always start in childhood, can show up at any stage of life. And patients are having a tricky time getting the right diagnosis.
Type 1 Diabetes Life
How do I start….? First of all, the Type 1 thing is doing as good as can be expected. I’m coming up on 29 years of managing this irreverent little punk. As per usual, it’s a day to day, moment to moment reality that has already been written about countless times by myself and just about, well, everyone who writes about Type 1 diabetes.
Symptoms of Diabetes Type 1 in Adults
It’s important to realize that early signs of type 1 diabetes in adults often develop quickly and may sometimes be brushed off—or mistaken for illness. Here’s what you should look out for...
A Do-It-Yourself Revolution in Diabetes Care
Now, as consumer gadgets weave themselves ever more tightly into everyday life, patients and their families are finding homespun solutions to problems medical-device manufacturers originally did not address. Industry executives say the pace of user-driven innovation was one reason the Food and Drug Administration recently reclassified remote glucose-monitoring devices, hastening approval for new models by big companies like Dexcom and Medtronics.
Frederick Banting’s discovery of insulin in the 1920s saved a child's life. It’s still saving lives
The Canadian scientist led the charge that discovered insulin.
Hacking Diabetes At Home
People with the disease have found new ways to modify their gear, and their own metabolisms.
More Ways to Cope With Type 1 Diabetes
With all the concern these days about the nationwide epidemic of Type 2 diabetes, it’s easy to lose sight of the less common but much more serious form of diabetes called Type 1.
My Vice is Hypoglycemia
Type 1 diabetes is physically taxing and its maintenance exhausting, but I've learned to live with my self-afflicting body.
Pricks and Needles: What Living With Type 1 Diabetes Is Like
Diabetes forces me to carefully plan out adventures and travels, but has not prevented me from some pretty amazing physical challenges. I spent my entire junior year of college studying abroad, went on a two-week hiking trip through immense mountain ranges, ran my first 10K last year, and ride my bike 13 miles into work most mornings. Thankfully, scientific research into the disease has evolved almost as quickly as my lifestyle, for both type 1 and type 2 diabetes.
Service Dogs Pick Up Scent of Diabetes Danger
The dog's accuracy and speed can beat medical devices, such as glucose meters and continuous glucose monitors, according to doctors, owners and trainers. With their acute sense of smell, the dogs—mostly retrievers—are able to react to a scent that researchers haven't yet identified.
Top 10 Type 1 Diabetes Blogs...
These 10 Blogs Provide Wonderful Insight into Different Aspects of Life with Type 1 Diabetes.
Why Is Type 1 Diabetes Rising Worldwide?
We almost take for granted that as obesity increases worldwide, diabetes will also, and it is. That is, type 2 diabetes – the kind that is linked to obesity and used to be called adult-onset diabetes – is rising as obesity does. But here's a puzzle: Type 1 diabetes – the autoimmune disease that begins in childhood and used to be called juvenile-onset diabetes – is rising too, around the globe, at 3 percent to 5 percent per year. And at this point, no one can quite say why.
8 things I wish people understood about having Type 1 diabetes
No, my life isn't over. It's a pain in the ass, it's terrifying, but the treatments will on average get me through the day.
Beyond Type 1
Founded in 2015 by Juliet de Baubigny, Nick Jonas, Sarah Lucas + Sam Talbot, Beyond Type 1 is leveraging the power of social media and technology, changing what it means to live with a chronic disease. By educating the global community about this autoimmune disease, as well as providing resources and supporting those living with Type 1 diabetes, Beyond Type 1 is bridging the gap from diagnosis to cure, empowering people to live well today and funding a better tomorrow.
Diabetics Doing Things
Diabetics do amazing things every day that go unnoticed. These are their stories.
Open Insulin Project
We're a team of Bay Area biohackers working on newer, simpler, less expensive ways to make insulin.
The Nightscout Foundation
The Nightscout Foundation exists to encourage and support the creation of open source technology projects that enhance the lives of people with Type 1 Diabetes and those who love them. This includes fundraising, advocacy, and direct software and hardware development.
Children with Diabetes
The online community for kids, families and adults with diabetes.
Children with Diabetes Research Foundation
The mission of the Children with Diabetes Research Foundation is to fund human clinical trials leading to cure and prevention of Type 1 diabetes. We are the venture capitalists of diabetes research, getting new, clinically relevant, innovative research off the ground.
Insulin Nation
Insulin Nation® delivers comprehensive information about the technology and science of diabetes therapy, and curates the best, most relevant news for the 6.5 million people in the US who take insulin. Topics covered include diabetes-specific technology and medicine, the science behind a potential cure, wearable and wireless health tech, the rich data produced by meters, pumps, and CGMs, and the people and organizations that impact the everyday lives of our readers – the “Citizens” of Insulin Nation.
Insulin Pumpers
Support and information for adults and children with diabetes.
Insulin Pumpers UK
Insulin Pumpers UK provides information and support for adults and children with diabetes and their families interested in insulin pump therapy.
Joslin Diabetes Center
With efforts in these three critical areas, a synergy develops: researchers, clinicians and educators collaborate in ways that produce cutting-edge scientific discovery, unique clinical care models and pioneering educational strategies.
NIDDK
Type 1 diabetes typically occurs in children and young adults, although it can appear at any age. Having a parent or sibling with the disease may increase your chance of developing type 1 diabetes. In the United States, about 5 percent of people with diabetes have type 1
PADRE Foundation
PADRE serves hundreds of families in the Orange County area, through a variety of activities that are hosted by the organization including; the Annual Family Retreat in Lake Arrowhead, the Harvest Carnival, the PADRE Fashion Show, the 'Hunt for the Cure' golf tournament, and Summer Camp.
Six Until Me
I started Six Until Me in May of 2005 because I was tired of Googling “diabetes” and coming up with little more than a list of complications and frightening stories. Where were all the people who were living with this disease, like I have been since I was a little girl? Was I the only diabetic out there who felt alone?
Type 1 Diabetes TrialNet
We are an international network of leading academic institutions, physicians, scientists and healthcare teams dedicated to the prevention of type 1 diabetes. We offer risk screening for relatives of people with type 1 diabetes and innovative clinical studies to preserve insulin production.
Type1Parents.org
Type 1 Parents is a community for Parents with Diabetic kids. We are more than your typical support group you will find on the net. We not only support our members, but also give them a place to be themselves to discuss a variety of topics.
AllEars.net
The point of this little bit of cyberspace is to be a place to collect and share thoughts on successfully managing vacations at Disney World with Type 1 diabetes. We also hope it will be fun. Fun for those who read it and fun for those who contribute to it.
American Diabetes Association
American Diabetes Association conducts programs in all 50 states and the District of Columbia, reaching hundreds of communities. Find out what is happening in your area.
dLife
Learn the details about Type 1 Diabetes. Discover the difference between Type 1 and Type 2 Diabetes, what to do about it and how to manage it.
EndocrineWeb
Information about Symptoms, Diagnosis, & Treatments of Type 1 Diabetes.
KidsHealth
KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence.
MedlinePlus
Trusted health information for you.
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