Retinoblastoma
The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye. The cancer is easy to diagnose and when treated early, is very curable - We C Hope
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A Few Things I’ve Learned on Our Journey with Retinoblastoma
Here are a few things I’ve learned on Khloe’s two and a half year journey with cancer that I’d like to share with other parents:
Don’t think that it won’t happen to you. It sounds cliché, but it’s true. It never occurred to me that cancer would hit our family. My heart would always go out to friends and other family members who were battling cancer or another serious health condition, but I never imagined it would happen to my family. Because of that, it took me a really long time to mentally process what was happening.
Be an advocate for your child. Regardless of whether your children have a serious health condition or not, learn how to be an advocate for them. It takes…
Resources
After retinoblastoma, Finn ‘keeps on showing us what he can do’
Born at just 24 weeks, Finn and Mack had been screened for various conditions related to their early birth, including an eye disease called retinopathy of prematurity, which can lead to blindness. But when Finn was only 34 weeks old, the screening revealed an unexpected concern: retinoblastoma, a rare type of childhood eye cancer.
An In-Depth Look at Pediatric Retinoblastoma
Pediatric Retinoblastoma noticeable symptoms include a white color in the center circle of the pupil when the light is shown in the eye, such as when taking a flash photograph. This often is the scenario where parents or anyone who see the picture of the child whose eyes have glint or a glare or some other whiteness in the pupil.
Detection and Diagnosis of Retinoblastoma: Can Mobile Devices Be the Next Step Toward Early Intervention?
Retinoblastoma (RB) is a common intraocular cancer in pediatric patients worldwide, and screening is routinely performed throughout the first few years of life. The diagnosis is often made clinically; however, the diagnosis can be delayed due to undetectable leukocoria because of small tumor size at the time of examination, missed appointments, non-compliance with eye examinations, or failure to perform the exam.
A Few Things I’ve Learned on Our Journey with Retinoblastoma
Like many four-year-olds, my daughter recently started attending preschool. It’s an exciting milestone for any parent, but for me, it was an achievement that I wasn’t certain my daughter Khloe would attain. That’s because Khloe has bilateral retinoblastoma, which is an advanced form of cancer in both of her eyes. When children have this disease, there is a possibility of them losing their eyes.
World Eye Cancer Hope
Increasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission.
Pediatric Retinoblastoma
Pediatric retinoblastoma is often missed during routine wellness check-ups by pediatricians. I have developed this website to build pediatric retinoblastoma awareness and to help parents identify pediatric retinoblastoma warning signs. Please share this resource with other parents, teachers, and child caregivers to help save a child's life.
ACCO
Retinoblastoma is a malignancy of the retinal cell layer of the eye. It is the most common eye tumor in children and it usually occurs before the age of five. It can occur in one eye (unilateral) or in both eyes (bilateral). Retinoblastoma is usually confined to the eye and has not spread to other tissues. The present challenge for those who treat retinoblastoma is to prevent blindness and other serious effects of treatment that reduce the life span or the quality of life after treatment.
OncoLink
Retinoblastoma occurs when there is a mutation to the retinoblastoma gene (RB or RB1). This is a tumor suppressor gene that acts as a brake on cell division. This gene is present in all cells in the body. There are two copies of the RB1 gene in each cell. This gene is located on chromosome 13q. In order for retinoblastoma to occur, both copies of the gene need to have the mutation.
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