Juvenile Arthritis
Let hope flare - Juvenile Arthritis Association
image by: Project Hope for Juvenile Arthritis
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Living with Juvenile Arthritis: A Parent’s Guide...
One thing that was a bit lacking when my daughter was diagnosed was resources. Obviously I googled the crap out of “juvenile arthritis” but I got a lot of the same stuff. When you have a child who is struggling with something, you typically want to basically read and learn every possible thing you can about it and you want to talk to parents of children dealing with the same thing.
You want information. You want support. You want hope.
My friend Kim also noticed this lack of information out there for the parents of children with juvenile arthritis... She wrote a book! In fact, she wrote a great book.
Resources
The Many Faces and Types of Juvenile Arthritis
While juvenile arthritis may seem straightforward, a Google search can send you down a rabbit hole of dozens of different diseases, treatments, and symptoms united by this one term! I’m always amazed by how JA can affect a child’s health in totally unexpected ways.
Children with arthritis lack vitamin D
In an analysis of global research, we recently found that children with the most frequent type of arthritis, juvenile idiopathic arthritis (JIA), have abnormally low vitamin D blood levels. We also found that those living in northern countries, such as Canada and northern European regions, are more likely to have low vitamin D levels and associated active disease.
Scientists pave way for better juvenile arthritis diagnosis, treatment outcome prediction
A previously unknown group of regulatory T cells have been found to be linked to juvenile arthritis and DNA features that affect patients' response to treatment. These findings pave the way for improved juvenile arthritis diagnosis and prediction of treatment outcomes, and are also relevant for adult rheumatoid arthritis.
The Boy With a Thorn in His Joints
That week we saw our pediatrician, who referred us to an orthopedist. When no injury showed up on the X-ray, the doctor said that arthritis was most likely the issue. Arthritis in a 3-year-old? It sounded more odd than alarming at first, but over the next few weeks, we watched Shepherd spend more and more time on the couch. His stiff-legged walk became more pronounced, though he claimed that he was just walking like a penguin. Then he started having trouble getting out of bed.
A Child's Suffering Drives A Mother To Seek Untested Treatments
When the drugs didn't work, Meadows was persuaded to look at his condition through a different prism and to consider the possibility that medications might not be the only answer.
Dealing With the Lasting Effects of Juvenile Arthritis
Many young people get lucky, and their JA goes into remission before adulthood. Others will deal with JA into adulthood, often being re-diagnosed with an adult form of the disease that aligns with the JA type they dealt with as a child. But a few from either group may go on to deal with some long-term effects of JA.
Living with Juvenile Arthritis
Juvenile arthritis can be well managed with long-term with medications and therapy, and children can live normal lives...
Living with juvenile arthritis: Mackenzie’s story
JIA often goes into remission, which can last for months, years or even a person’s lifetime....
Myths and Facts About Juvenile Arthritis
Myth 1: Juvenile arthritis goes away as children reach adulthood Although some kids can go into remission, the majority of juvenile arthritis cases are lasting and require treatment for the rest of your child’s life. The good news is that with the right treatment, JA can be well-controlled. However, flare-ups are always a possibility.
Living with Juvenile Arthritis: A Parent’s Guide...
One of the reasons I write about my daughter’s illness is awareness. People tend to know very little about this disease...
7 things you need to know if your child has been diagnosed with juvenile arthritis
Here are the top things Tammy says are essential to know if your child is diagnosed with juvenile arthritis.
Juvenile Arthritis Association
Juvenile Arthritis Association is the only nonprofit dedicated exclusively to the 300,000 children in the U.S. battling pediatric rheumatic diseases— and the families fighting alongside them.
Juvenile Arthritis News
Juvenile Arthritis News is strictly a news and information website about the disease.
Project Hope for Juvenile Arthritis
A page dedicated to the children and teens living with Juvenile Arthritis all over the world. This page is to educate, inspire, give hope, and spread awareness to help find a CURE for this disease.
Cassie + Friends
Cassie + Friends is the only charity in Canada dedicated 100% to the pediatric rheumatic disease community. Rooted in our four pillars, we champion research, information, connection and support for pediatric rheumatic diseases.
Juvenile Arthritis Research
Our vision is a world where no child has to suffer from arthritis. Our core aims include research to find a cure for JIA, raising awareness that children and young people get arthritis and providing support to children with JIA and their families.
Systemic JIA Foundation
Our simple and urgent focus is finding a cure for Systemic JIA also known as Still's Disease.
That Girl With Arthritis
That Girl With Arthritis started in 2020. I simply was hoping to build community, find people like me with chronic illnesses, and maybe bring something new to the community that could be beneficial.
Arthritis Foundation
Juvenile idiopathic arthritis (JIA) is the most common type of arthritis in kids and teens. It typically causes joint pain and inflammation in the hands, knees, ankles, elbows and/or wrists. But, it may affect other body parts too . JIA used to be called juvenile rheumatoid arthritis (JRA), but the name changed because it is not a kid version of the adult disease. The term “juvenile arthritis” is used to describe all the joint conditions that affects kids and teens, including JIA.
Hadley's Heroes
Since 2018 Hadley’s Heroes has raised over $33,000 for the Arthritis Foundation through the Walk to Cure Arthritis.
JIA Mom's Blog
I’m a mom whose daughter has been battling systemic juvenile idiopathic arthtritis since 2001. This is just a place to share what we have learned, what we are continuing to learn, and to put words to our hopes for the future.
JIA-at-NRAS
JIA-at-NRAS is a part of the National Rheumatoid Arthritis Society (NRAS). We design, coordinate, fund and deliver a comprehensive and wide range of high quality products and services for all affected by RA and JIA.
National Institute of Arthritis and Musculoskeletal and Skin Diseases
The most common type of arthritis in children is called juvenile idiopathic arthritis (idiopathic means “from unknown causes”). There are several other forms of arthritis affecting children.
CDC
Arthritis in children is called childhood arthritis or juvenile arthritis. The most common type of childhood arthritis is juvenile idiopathic arthritis (JIA), also known as juvenile rheumatoid arthritis. Childhood arthritis can cause permanent physical damage to joints. This damage can make it hard for the child to do everyday things like walking or dressing and can result in disability.
Harvard Health
Arthritis involves inflammation of the joints that causes pain and swelling. Although many people believe arthritis is a disease of old age, various forms of arthritis can affect just about anyone at any age. When arthritis occurs in children younger than age 16, it is called juvenile arthritis.
KidsHealth
No one really knows what causes JIA. Something in the environment, like a virus, may trigger the disease in kids that already have certain genes that make it more likely for them to get it.
MedlinePlus
The most common type of JA that children get is juvenile idiopathic arthritis. There are several other forms of arthritis affecting children. One early sign of JA may be limping in the morning. Symptoms can come and go. Some children have just one or two flare-ups. Others have symptoms that never go away. JA can cause growth problems and eye inflammation in some children
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