Cystic Fibrosis

You need to see yourself as a normal person. CF is just something that you have to deal with everyday - not something that controls the direction of your life - Colleen, Live Love Laugh Breathe Blog

Cystic Fibrosis

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The Ten Things That Make My (CF) Life Easier


This idea actually spun off from me thinking about how thankful I am for different things in my life. I then got to thinking about how much easier my (CF) life is because of certain things I've either bought, inherited, or stumbled upon. Here is the top ten, actually 16, and why I think they make my life better.

16. Good Veins- Having hoses running through my arms has given me the privilege of avoiding multiple sticks most of my life (except this time). I'm not sure if it's something I've done, or just inherited, but I do know that they have made my CF experience more enjoyable. I've had 30+ PICC lines though so who knows how much more they can take.

15. Foot Orthotics-…

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 The Ten Things That Make My (CF) Life Easier

This idea actually spun off from me thinking about how thankful I am for different things in my life. I then got to thinking about how much easier my (CF) life is because of certain things I've either bought, inherited, or stumbled upon. Here is the top ten, actually 16, and why I think they make my life better.

Breathe Easy

My thoughts, photos, and opinions on Life with Cystic Fibrosis, Having a Double Lung Transplant and Everything in Between.

Cure4CF Foundation

Established in 2009, the Cure4CF Foundation is a registered not for profit charity with the primary goal of finding a cure for Cystic Fibrosis. Cure4CF itself does not conduct research but rather seeks to achieve its goal by raising and directing funds to promising avenues of research.

Cystic Fibrosis Lifestyle Foundation

The Cystic Fibrosis Lifestyle Foundation is about guiding the choices made to live successfully with CF. Through recreation grants and educational programs CFLF assists people living with CF to thrive, not just survive. By inspiring healthy and active lifestyles through fitness, exercise, and outdoor recreation activities the CFLF educates people living with Cystic Fibrosis about the critical psychological, social and emotional connections between their lifestyle and their health.

Cystic Fibrosis News

Cystic Fibrosis News is a digital news publication dedicated to offering comprehensive daily news coverage of CF.

Cystic Fibrosis Research, Inc

Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

CysticLife

"CysticLife.org is a place where anyone affected by CF can come to be inspired, motivated and educated. The CysticLife community has become an online family; loving and supporting each other from all across the globe." - Ronnie Sharpe, Founder. CysticLife.org is funded by paid marketing projects, a generous angel investor, and out of the pockets of family, friends and founders. It truly is a labor of love.

Jamie Bug

On December 10,2007 just 3 days after being listed I received new lungs. I was given a miracle! God had a plan for me, God answered my prayers. It wasn't easy, but it is worth it!

Jerry Cahill

The common belief in this video is that compliance prolongs the life of anyone living with cystic fibrosis.

Live Love Laugh Breathe

I was also born with Cystic Fibrosis and this blog is to show how I am still able to Live, Laugh, Love & Breathe no matter what!

More Than DNA

Hi, I'm Cheriz and I have Cystic Fibrosis! This blog is about my life and how CF affects my daily life. I hope to offer support for others in the CF community.

So What Life

I’m Lauren and I’m thriving with cystic fibrosis, a chronic illness I was born with. From the day I was diagnosed at 3 years old, my mom and dad decided their girl wasn’t gonna live in a bubble. If my life would be short, at the very least, they would allow me to live my best life possible.

A Matter of Life and Breath

Life, Lung transplant, and Cystic Fibrosis. And Everything In Between.

Boomer Esiason Foundation

Team Boomer is a program that: encourages people with cystic fibrosis to incorporate exercise into their everyday lives; provides an avenue for individual athletes in a variety of sports to raise money for cystic fibrosis; and offers assistance to grassroots athletic events looking for a cause to support.

CF Europe

CFE fights for a better and longer life for all people with CF in Europe. We want to ensure that all CF patients have equal access to the best possible treatment now, to enable them to benefit from disease stopping therapies in the near future. By building stronger CF associations throughout Europe and collaborating with all stakeholders towards this goal, CFE works for better access to care and a better quality of life for every child and adult living with CF in Europe.

Confessions of a Cyster

I am a 35 year old living with Cystic Fibrosis. I have had my ups and downs, but try my best to live a normal life. For now I am just living each day to the fullest, trying to juggle it all. These are my ramblings...

Cystic Fibrosis Canada

Cystic Fibrosis Canada is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis. Cystic Fibrosis Canada is an internationally-recognized leader in CF research, innovation, and clinical care.

Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.

Cystic Fibrosis Scholarship Foundation

The mission of the Cystic Fibrosis Scholarship Foundation is to provide an opportunity for young adults with CF to further their education at a college or vocational school. This possibility is often out of reach for families with CF children because of the high cost of medical care from the time these students were babies.

Cystic Fibrosis Trust

We are the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them.

CysticFibrosis

CysticFibrosis.com is a social health community, founded in 1996 at the dawn of the Internet and the rise of the e-patient – the electronic or empowered patient. We are a source of information, hope, and encouragement for patients and families affected by CF.

European Cystic Fibrosis Society

The European Cystic Fibrosis Society aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis.

North American Cystic Fibrosis Conference

The NACFC serves as a collaborative forum to advance research for the treatment and cure of CF, and is an ideal opportunity to receive state-of-the-art continuing medical education and learn about the latest products and services in CF care.

Not So Bright & Shiny

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings...

One Breath at a Time - Living with Cystic Fibrosis

I saw that blogging was a way that many of them were sharing what was going on in their lives. So I started this blog. I found that it was a great way to get things off my chest. More than anything else, it has been a way for me to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is. I couldn't ask for more than that.

Run, Sickboy, Run

Blessed with Cystic Fibrosis and a positive attitude, it is my duty and passion to show the cystic fibrosis community that anything is possible through this blog that discusses the daily trials and triumphs that accompany not only life, but a CF life.

RunSickboyRun.com

Blessed with Cystic Fibrosis and a positive attitude, it is my duty and passion to show the cystic fibrosis community that anything is possible through this blog that discusses the daily trials and triumphs that accompany not only life, but a CF life.

American Lung Association

Cystic Fibrosis is an inherited disease that causes thick, sticky mucus to form in the lungs, pancreas and other organs. In the lungs, this mucus blocks the airways, causing lung damage and making it hard to breathe. In the pancreas, it clogs the pathways leading to the digestive system, interfering with proper digestion.

Confessions Of a CF Husband

My name is Nathan. My wife, Tricia has Cystic Fibrosis and had been preparing for a double lung transplant until we discovered we were pregnant. Surviving a premature birth, double lung transplant and lymphoma is just the beginning of our story.

Genetics Home Reference

Cystic fibrosis is an inherited disease characterized by the buildup of thick, sticky mucus that can damage many of the body's organs. The disorder's most common signs and symptoms include progressive damage to the respiratory system and chronic digestive system problems. The features of the disorder and their severity varies among affected individuals.

Lab Tests Online

Lab Tests Online has been designed to help you better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.

Medical News Today

The latest Cystic Fibrosis News articles published daily. Includes news on Cystic Fibrosis or Mucoviscidosis - a life-threatening inherited genetic disease. Includes current research, treatment, symptoms and screening programs.

National Heart, Lung and Blood Institute

The symptoms and severity of CF vary. If you or your child has the disease, you may have serious lung and digestive problems. If the disease is mild, symptoms may not show up until the teen or adult years.

ScienceDaily

Cystic fibrosis (CF), also called mucoviscidosis, is an autosomal, recessive, hereditary disease of the exocrine glands. It affects the lungs, sweat glands and the digestive system, causing chronic respiratory and digestive problems.

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