Lennox-Gastaut syndrome

Every day is different. Every moment is different. And, the gift that comes with that is that he has forced us to focus in on every single moment. Every little thing is a celebration - Karen, mother of adult son Dan

Lennox-Gastaut syndrome
Lennox-Gastaut syndrome

image by: Emma Faisal

HWN Recommends

7 Things I Wish I Knew After My Child's Lennox-Gastaut Syndrome Diagnosis

As the mother of a child with Lennox-Gastaut syndrome (LGS), there are many things I wish I had known after the diagnosis. I hope this list will help other parents who are starting out on their LGS journey alongside their children.

1. You are not alone. When my daughter Isabela was diagnosed with LGS, it was very overwhelming and scary. It’s not everyday your world is shattered into pieces when you learn your loved one has a condition with no cure. Finding others going through this can be a big help! When I found the LGS Foundation, I felt like a part of a family– a family that was able to understand my struggles. Knowing you’re not alone helps cushion the roller coaster…

read full article

Resources

 7 Things I Wish I Knew After My Child's Lennox-Gastaut Syndrome Diagnosis

As the mother of a child with Lennox-Gastaut syndrome (LGS), there are many things I wish I had known after the diagnosis. I hope this list will help other parents who are starting out on their LGS journey alongside their children.

Lennox-Gastaut syndrome: A Guide for Caregivers

The cause of LGS is unknown in about 30% of people diagnosed with LGS—that's about 1 out of 3 diagnosed cases. You may have heard of these cases being referred to as "idiopathic" or "cryptogenic." However, in the remaining 70% of cases, LGS has an identified cause.

LGS Foundation

The LGS Foundation's mission is to improve the lives of individuals affected by Lennox-Gastaut Syndrome through research, family support programs, and education.

LGS Together

LGS Together connects the epilepsy community, particularly those affected by Lennox-Gastaut Syndrome (LGS).

Living with LGS

This Eisai community provides you with practical and educational information to help you better care for your loved one with Lennox-Gastaut syndrome.

NINDS

Treatment for Lennox-Gastaut syndrome includes clobazam and anti-epileptic medications such as valproate, lamotrigine, felbamate, or topiramate. There is usually no single antiepileptic medication that will control seizures. Children who improve initially may later show tolerance to a drug or have uncontrollable seizures.

NORD

There is no consensus in the medical literature on the exact definition of Lennox-Gastaut syndrome. Generally, three findings are necessary for the diagnosis: multiple generalized seizure types; a slow spike-and-wave pattern (less than 2.5 Hz) on EEG; and cognitive dysfunction.

Patient

The Lennox-Gastaut syndrome is characterised by multiple types of epileptic seizures, a characteristic electroencephalogram (EEG) with generalised slow spike-and-wave discharges, psychomotor delay and behavioural disorders. The onset is usually before the age of 8, with a peak between the ages of 3 and 5 years. Late cases occurring in adolescence and early adulthood have rarely been reported.

Introducing Stitches!

Your Path to Meaningful Connections in the World of Health and Medicine
Connect, Collaborate, and Engage!

Coming Soon - Stitches, the innovative chat app from the creators of HWN. Join meaningful conversations on health and medical topics. Share text, images, and videos seamlessly. Connect directly within HWN's topic pages and articles.


Be the first to know when Stitches starts accepting users


Stay Connected