Life is merely a fracas on an unmapped terrain, and the universe a geometry stricken with epilepsy - Emile Cioran


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Be cool, don't gawp, go help!

Hey you! welcome! What would you do if you witnessed as seizure? Here's what we would do: Be cool, don't gawp, go help!! Make them safe and protect from injury (obvious reason.) Don't restrain!!! Don't stick anything…

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 Be cool, don't gawp, go help!

What would you do if you witnessed as seizure? Here's what we would do...

Purple Day

Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26th annually, people in countries around the world are invited to wear purple and host events in support of epilepsy awareness.


Log and track seizure activity, appointments, and medication schedules through a simple calendar interface from your computer or mobile phone.


Citizens United for Research in Epilepsy is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease.


Epilepsia is the leading, most authoritative source for current clinical and research results on all aspects of epilepsy. As the journal of the International League Against Epilepsy, subscribers every month will review scientific evidence and clinical methodology...

Epilepsy Foundation

The mission of the Epilepsy Foundation is to stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.

Epilepsy Society

Our vision is a full life for everyone affected by epilepsy. We want everyone affected by epilepsy to have the best opportunity for a full life — as free from seizures as possible. We set out to make a difference to every person affected by epilepsy whatever their background, however seriously it affects them, and whether they have the condition themselves or are close to someone with epilepsy.

Epilepsy Sucks UK

Welcome To Epilepsy Sucks UK. Formed by two mothers who both have children diagnosed with epilepsy and share the same view: It sucks harder than a Dyson in a black hole! Sallieann Gould & Vicki Evans, have over 20 years experience of life with epilepsy. Distinguishing seizure types, treatment options, navigating the education and health care system, cutting through the jargon, keeping our ears to the ground to find the latest information and solutions ,sharing safety tips and spreading the word that Epilepsy Sucks.

Epilepsy Warriors

Sudden Unexplained Death in Epilepsy [SUDEP] accounts for 10% of all Epilepsy-related deaths; 85% of these fatalities occur between the ages of 20 -50. The Epilepsy Warriors Foundation feels it is important to reach out to as many people and companies as possible to help raise awareness for a devastating disease one that has claimed so many of our children and young people. We hope that you will join us in our efforts to improve the quality of life for those afflicted with and by this complicated disorder.


Epilepsies or seizure disorders are common diseases of the brain. Many types of epilepsies have a genetic etiology. Finding these genes and characterizing them will lead to insights about the physiology of epilepsies and -hopefully- novel treatment options. In our blog “Beyond the Ion Channel”, we try to make our research more understandable, digestable and interpretable.

International Bureau for Epilepsy

The International Bureau for Epilepsy (IBE) was established in 1961 as an organisation of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. The IBE addresses such social problems as education, employment, insurance, driving licence restrictions and public awareness. The Bureau also works in close liaison with the International League against Epilepsy (ILAE), an organisation of medical professionals involved in the medical and scientific issues of epilepsy.

International League Against Epilepsy

The International League Against Epilepsy (ILAE) was founded in 1909 and is an organisation of more than 100 national chapters. The goals of the ILAE are: -To advance and disseminate knowledge about epilepsy -To promote research, education and training -To improve services and care for patients, especially by prevention, diagnosis and treatment

Living Well With Epilepsy

Living Well With Epilepsy is a leading epilepsy blog that covers the full spectrum of issues faced by people living with all types of seizure disorders. We aim to inspire people living with epilepsy through a unique mix of news, personal stories, commentary, interviews, guest posts, and forums.

National Association of Epilepsy Centers

The primary objectives of NAEC are to connect people with epilepsy to specialized epilepsy care, and to support epileptologists and administrators in the operation of their epilepsy centers. Founded in 1987 by physician leaders committed to setting a national agenda for quality epilepsy care, the NAEC educates public and private policymakers, and regulators about appropriate patient care standards, reimbursement and medical services policies. NAEC works in conjunction with existing scientific and charitable epilepsy organizations.

Young Epilepsy

Young Epilepsy is a national charity with over 100 years' experience as a centre of expertise for all young people with epilepsy and other neurological conditions.

American Epilepsy Society

The American Epilepsy Society is one of the oldest neurological professional organizations in this country. The Society seeks to promote interdisciplinary communications, scientific investigation and exchange of clinical information about epilepsy.

Canadian Epilepsy Alliance

The Canadian Epilepsy Alliance (CEA) is a Canada-wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness.

Charlie Foundation

The Charlie Foundation to Help Cure Pediatric Epilepsy was founded in 1994 after twenty month old Charlie Abrahams, having endured multiple daily seizures, and failed every available anti-convulsant drug and one brain surgery, was cured of his epilepsy by the ketogenic diet at Johns Hopkins Hospital. The diet was undertaken despite resistance from the five pediatric neurologists he had seen. When Charlie's parents realized that Charlie was but one of hundreds of thousands of children whose families were either not being informed, or being misinformed about dietary therapy, they started The Charlie Foundation...

Epilepsy Action Australia

Beginning in 1952 as a local association, Epilepsy Action Australia has developed into the largest provider of specialist epilepsy services in the community for people with epilepsy and other seizure disorders, their carers, families and the broader community.

Epilepsy Australia

Epilepsy Australia is the national coalition of Australian Epilepsy Associations raising our voices as one to advance the cause of all Australians living with epilepsy. Actively delivering counseling, support and information to all who access our services, Epilepsy Australia is committed to raising awareness and understanding of the very real issues faced by those living with epilepsy.

Epilepsy Canada

Epilepsy Canada is a non-profit organization whose mission is to enhance the quality of life for persons affected by epilepsy through promotion and support of research and facilitation of education and awareness initiatives that build understanding and acceptance of epilepsy. Epilepsy Canada is governed by a national board with national representation. Partner associations of Epilepsy Canada provide direct services to those with epilepsy and their families.

Epilepsy New Zealand

Established since 1956 Epilepsy New Zealand has grown from one Branch to 15. The first ‘Epilepsy Week’ was held in 1971 and in 1977 the Association launched its emphasis on field-work. Epilepsy New Zealand continues to develop it services to meet the demands of its clients and members. As a result, individuals, friends and family can feel more confident that they will not be considered disadvantaged by having epilepsy.

Serene's Epilepsy Legacy

I have been an epilepsy advocate for 13 years. It is extremely difficult and challenging for an individual to promote epilepsy awareness single handedly but it is not totally impossible. Through promoting epilepsy awareness I had come to know of some wonderful and inspiring people whom I look up to and who had opened doors for me to reach out to the public. My family members and good friends have always been my main driving force to excel in my advocacy work. Roughly 50 million people worldwide have epilepsy. Epilepsy is 3 times more common than multiple sclerosis and more than 3 times as common as Parkinson's disease and cerebral palsy. One person in 50 will develop epilepsy at some time in their life. One in 20 will have a single epileptic seizure.

Singapore Epilepsy Foundation

Singapore Epilepsy Foundation is the Singapore Chapter of the International Bureau for Epilepsy. Our main objective is to improve the quality of life of people with epilepsy. SEF website will provide you with relevant information regarding epilepsy and seeks to keep people with epilepsy updated with the latest developments in the field.

The Art of Living with Epilepsy

The Art of Living with Epilepsy http://jade-epilepsymynewlife.blogspot.com/ This blog is aimed at throwing the spot light on everyday life with a diagnosis of Epilepsy purely from a patients point of view. A diary open to anyone who wishes to read it. Mixed in every now and again with facts, figures and ways to help I have sourced. I am a firm believer that it really is the little things that matter in life. So while a diagnosis of Epilepsy is the bigger picture, it is how it effects the little things in daily life that may otherwise be overlooked that becomes important. Hopefully a little advice on how to deal with these smaller aspects that may have to be altered will go along way. For just one person to read a little bit of an honest blog and realise that inevitably life will change but it's how you deal with these changes that becomes vital, is my little wish.

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