Hypoxic Ischemic Encephalopathy

There is a lot more known about the conditions that can arise as a result of HIE such as Cerebral Palsy, Epilepsy and Global Developmental Delay to name but a few. Yet HIE remains relatively unspoken about - Emma Louise Cheetham

Hypoxic Ischemic Encephalopathy
Hypoxic Ischemic Encephalopathy

image by: Hope for HIE Foundation - Hypoxic Ischemic Encephalopathy

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FYIs About HIE

If you already know what Hypoxic-Ischemic Encephalopathy (HIE) is, it was probably a terrifying experience that brought you to this information. For this, I see you and I feel for you. For those who don’t know what HIE is, I hope to educate you and make you more aware of this condition, as April is HIE awareness month. HIE is estimated to occur somewhere between 2-9 in every 1,000 births, and this diagnosis accounts for approximately 8% of all admissions at the hospital I work at. This means that babies with HIE make up a large part of my caseload in the NICU. It also means that the babies/families it affects, as well as effective treatments for HIE, are near and dear to my heart.

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Resources

 FYIs About HIE

Each baby’s journey with HIE is different, and depends on a multitude of factors. There is a lot about HIE that is unknown, unpredictable, and uncertain, as the brain is a complex and ever-evolving system, especially in little ones.

2-3 of every 1,000 live births are impacted by Hypoxic Ischemic Encephalopathy (HIE), resulting in a unique NICU experience.

While NICU's are commonly associated with premature babies, most HIE babies are typically near or full term, born very sick, and go through a unique NICU experience. HIE has a wide variety of causes - from placental issues to cord compression during birth - and has some pediatric causes like near-SIDS events.

HIE Help Center

The HIE Help Center seeks to support and inform the families and loved ones of children with disabilities stemming from hypoxic-ischemic encephalopathy (HIE). We aim to be a useful one-stop information center to help families navigate disability resources without having to spend hours on dozens of different websites.

Hope for HIE

To improve the quality of life for children and families affected by neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy through awareness, education and support.

Peeps HIE

We provide support to parents, families & friends of those affected by HIE (Hypoxic-Ischaemic Encephalopathy), raising awareness of HIE.

Bliss

Hypoxic-ischaemic encephalopathy (HIE) may be diagnosed if your baby’s brain does not receive enough oxygen and/or blood flow around the time of birth. You might hear this being referred to as ‘asphyxia’, ‘birth asphyxia’ or ‘perinatal asphyxia’. Low oxygen and/or blood flow to a baby’s brain happens most commonly before or during birth, but it can also happen shortly after birth.

Cerebral Palsy Guide

HIE is a type of birth injury that is sometimes also referred to as birth asphyxia, perinatal asphyxia, or neonatal encephalopathy.

Epilepsy Foundation

Most commonly, HIE occurs in newborns after a difficult birth. It may also occur after the child is born because of a severe heart problem or illness. This may lead to reduced blood flow, low oxygen levels, or very low blood pressure.

NINDS

Hypoxic ischemic encephalopathy (HIE) is an umbrella term for a brain injury that happens before, during, or shortly after birth when oxygen or blood flow to the brain is reduced or stopped.

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