Encephalitis
The invisible nature of encephalitis makes it difficult, sometimes impossible, to have the public show true compassion for what we are coping with, every day - A Survivor
image by: The Encephalitis Society
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Everything happens for a reason
So you may know by now that one of my favourite go-to quotes is the one of ‘everything happens for a reason’. But, sometimes I find this almost impossible to live by. Sometimes things happen that I can see absolutely no reason for whatsoever.
It seems to me that bad things happen to good people. And the older I get the more this seems to be the case. There have been so many tragedies throughout history, with no explanation as to why they have happened.
Why should people have to live with nothing whilst others have more money and possessions than they could ever need? Why do some people have to go through life changing illnesses whilst others breeze through life taking no…
Resources
What is Encephalitis?
Mortality is higher than many other neurological diseases, and may be even more so in low- to middle-income countries, particularly where vaccination programmes do not exist for preventable forms of the condition, such as measles encephalitis and Japanese encephalitis.
What Success Looks Like Post Encephalitis
Regardless of how we acquired encephalitis … West Nile, auto-immune disorder, Herpes, Lyme’s, etc. the outcomes are similar. Memory loss, extreme fatigue, speech disorders and mostly, well, identity loss. How do I get back to who I used to be? And interestingly, what DOES success look like?
Everything happens for a reason
So you may know by now that one of my favourite go-to quotes is the one of ‘everything happens for a reason’. But, sometimes I find this almost impossible to live by. Sometimes things happen that I can see absolutely no reason for whatsoever.
Encephalitis Global
Helping people survive encephalitis.
Encephalitis Society
The Encephalitis Society is an organisation that was founded on the principle of mutual support. Our desire to influence change is informed by the direct experience of people affected by Encephalitis and their families and carers.
International Autoimmune Encephalitis Society
The International Autoimmune Encephalitis Society is a Family/Patient centered organization that assists patients from getting a diagnosis to recovery and the many challenges experienced throughout that journey.
Anti-NMDA Receptor Encephalitis Foundation
The Anti-NMDA Receptor Encephalitis Foundation exists for all patients and caregivers, at all stages of illness and recovery. Together we will continue the battle; we will encourage those in the trenches; and we will fight for the memory of those no longer with us. Join us in our goals to promote awareness, provide support, and raise funds for research committed to understanding and ending this and related diseases.
Autoimmune Encephalitis Alliance
The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.
BDBrainWreck.com
Brain Wreck … "It's All In My Head, But I'm Not Crazy"
Brinjury and Life
Yet another NMDA sufferer. Niamh’s latest post is celebrating her 6 year anniversary of contracting encephalitis. Based in Ireland - My Broken Brain
My Broken Brain
Putting the pieces back together again after encephalitis.
National Institute of Neurological Disorders and Stroke
Symptoms of encephalitis include sudden fever, headache, vomiting, heightened sensitivity to light, stiff neck and back, confusion and impaired judgment, drowsiness, weak muscles, a clumsy and unsteady gait, and irritability. Symptoms that might require emergency treatment include loss of consciousness, seizures, muscle weakness, or sudden severe dementia.
Sophie Gwyther
Life before, during and after NMDAR Encephalitis.
Tick-borne Encephalitis
Tick-borne encephalitis (TBE) is caused by an RNA virus known, simply, as “tick-borne encephalitis virus,” or TBEV. The virus belongs to the genus Flavivirus, which contains several dozen human pathogens, including the causative agents of Yellow fever, dengue fever, West Nile encephalitis, Japanese encephalitis and Powassan fever.
Jenny's Blog
My life before, during and after autoimmune limbic encephalitis with positive NMDA receptors.
Joining the Dots
It took over 2 months to diagnose Viral Encephalitis and years of trial and error to identify coping strategies that have enabled me to live with Acquired Brian Injury, the permanent consequence of my Encephalitis. This blog is my opportunity to share the tips and tricks that I had to learn for myself and that have helped me to handle the situation I found myself in.
KidsHealth
Because encephalitis can follow or accompany common viral illnesses, there sometimes are signs and symptoms of these illnesses beforehand. But often, the encephalitis appears without warning.
Life in the Fastlane
Encephalitis an acute encephalopathy due to an inflammatory cause. Underlying causes are numerous and may be infectious or non-infectious, many of which lack effective therapies.
MayoClinic
Encephalitis can cause flu-like symptoms, such as a fever or severe headache. It can also cause confused thinking, seizures, or problems with senses or movement. However, many cases of encephalitis result in only mild flu-like symptoms or even no symptoms.
MedlinePlus
Encephalitis is most often caused by a viral infection. Other causes of encephalitis may include: •An allergic reaction to vaccinations •Autoimmune disease •Bacteria such as Lyme disease, syphilis, and tuberculosis •Parasites such as roundworms, cysticercosis, and toxoplasmosis in AIDS patients and other people who have a weakened immune system •The effects of cancer
Patient
Encephalitis is inflammation of the brain. It is usually caused by a viral infection. In the UK, the most common virus to cause encephalitis is herpes simplex virus. Symptoms usually start with the common symptoms of a viral infection such as high temperature.
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