The invisible nature of encephalitis makes it difficult, sometimes impossible, to have the public show true compassion for what we are coping with, every day - A Survivor


image by: The Encephalitis Society

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Everything happens for a reason

So you may know by now that one of my favourite go-to quotes is the one of ‘everything happens for a reason’. But, sometimes I find this almost impossible to live by. Sometimes things happen that I can see absolutely no reason for whatsoever.

It seems to me that bad things happen to good people. And the older I get the more this seems to be the case. There have been so many tragedies throughout history, with no explanation as to why they have happened.

Why should people have to live with nothing whilst others have more money and possessions than they could ever need? Why do some people have to go through life changing illnesses whilst others breeze through life taking no…

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 Everything happens for a reason

So you may know by now that one of my favourite go-to quotes is the one of ‘everything happens for a reason’. But, sometimes I find this almost impossible to live by. Sometimes things happen that I can see absolutely no reason for whatsoever.

Encephalitis Global

Helping people survive encephalitis.

Encephalitis Society

The Encephalitis Society is an organisation that was founded on the principle of mutual support. Our desire to influence change is informed by the direct experience of people affected by Encephalitis and their families and carers.

International Autoimmune Encephalitis Society

The International Autoimmune Encephalitis Society is a Family/Patient centered organization that assists patients from getting a diagnosis to recovery and the many challenges experienced throughout that journey.

Anti-NMDA Receptor Encephalitis Foundation

The Anti-NMDA Receptor Encephalitis Foundation exists for all patients and caregivers, at all stages of illness and recovery. Together we will continue the battle; we will encourage those in the trenches; and we will fight for the memory of those no longer with us. Join us in our goals to promote awareness, provide support, and raise funds for research committed to understanding and ending this and related diseases.

Autoimmune Encephalitis Alliance

The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


Brain Wreck … "It's All In My Head, But I'm Not Crazy"

Brinjury and Life

Yet another NMDA sufferer. Niamh’s latest post is celebrating her 6 year anniversary of contracting encephalitis. Based in Ireland - My Broken Brain

My Broken Brain

Putting the pieces back together again after encephalitis.

National Institute of Neurological Disorders and Stroke

Symptoms of encephalitis include sudden fever, headache, vomiting, heightened sensitivity to light, stiff neck and back, confusion and impaired judgment, drowsiness, weak muscles, a clumsy and unsteady gait, and irritability. Symptoms that might require emergency treatment include loss of consciousness, seizures, muscle weakness, or sudden severe dementia.

Sophie Gwyther

Life before, during and after NMDAR Encephalitis.

Tick-borne Encephalitis

Tick-borne encephalitis (TBE) is caused by an RNA virus known, simply, as “tick-borne encephalitis virus,” or TBEV. The virus belongs to the genus Flavivirus, which contains several dozen human pathogens, including the causative agents of Yellow fever, dengue fever, West Nile encephalitis, Japanese encephalitis and Powassan fever.

Jenny's Blog

My life before, during and after autoimmune limbic encephalitis with positive NMDA receptors.

Joining the Dots

It took over 2 months to diagnose Viral Encephalitis and years of trial and error to identify coping strategies that have enabled me to live with Acquired Brian Injury, the permanent consequence of my Encephalitis. This blog is my opportunity to share the tips and tricks that I had to learn for myself and that have helped me to handle the situation I found myself in.


Because encephalitis can follow or accompany common viral illnesses, there sometimes are signs and symptoms of these illnesses beforehand. But often, the encephalitis appears without warning.

Life in the Fastlane

Encephalitis an acute encephalopathy due to an inflammatory cause. Underlying causes are numerous and may be infectious or non-infectious, many of which lack effective therapies.


Encephalitis can cause flu-like symptoms, such as a fever or severe headache. It can also cause confused thinking, seizures, or problems with senses or movement. However, many cases of encephalitis result in only mild flu-like symptoms or even no symptoms.


Encephalitis is most often caused by a viral infection. Other causes of encephalitis may include: •An allergic reaction to vaccinations •Autoimmune disease •Bacteria such as Lyme disease, syphilis, and tuberculosis •Parasites such as roundworms, cysticercosis, and toxoplasmosis in AIDS patients and other people who have a weakened immune system •The effects of cancer


Encephalitis is inflammation of the brain. It is usually caused by a viral infection. In the UK, the most common virus to cause encephalitis is herpes simplex virus. Symptoms usually start with the common symptoms of a viral infection such as high temperature.

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