Spina Bifida

70% of the cases of Spina Bifida could be prevented by taking Folic acid. But the number of cases have gone through the roof lately, because of a lack of nutritional responsibility - Boris Kodjoe

Spina Bifida
Spina Bifida

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“Spina” What? 10 Things to Know About Myelomeningocele


You’ve just been told by your doctor that your baby has spina bifida. Between the tears you’re fighting back and the questions running through your mind, you’re probably scratching your head in confusion about all of this “spina-something” business.

Spina bifida. Myelomeningocele. A neural tube defect in which the spinal column fails to close completely within the first 28 days of fetal development.

You’re feeling scared and sad. Perhaps your doctor recommends termination. Perhaps not. When my son was diagnosed with spina bifida at my 19-week anatomy scan, I was in your shoes. I was terrified. Worried. Unsure about the future.

I’m not a medical professional.…

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 “Spina” What? 10 Things to Know About Myelomeningocele

You’ve just been told by your doctor that your baby has spina bifida. Between the tears you’re fighting back and the questions running through your mind, you’re probably scratching your head in confusion about all of this “spina-something” business. Spina bifida. Myelomeningocele. A neural tube defect in which the spinal column fails to close completely within the first 28 days of fetal development.

Faces of Spina Bifida

Faces of Spina Bifida is an online magazine, a place to celebrate diversity among people living with Spina Bifida. It’s an online community where people chronicle their lives, are inspired, and make connections.

Spina Bifida Resource Network

SBRN is a source of support and information, and provides opportunities for the Spina Bifida Community to connect on a personal level.

International Federation for Spina Bifida and Hydrocephalus

The mission of IF is to improve the quality of life of people with Spina Bifida and Hydrocephalus throughout the world and to decrease the prevalence of Spina Bifida and Hydrocephalus by primary prevention. In its work, IF is focusing in four main domains; Prevention, International Solidarity, Human Rights and Knowledge Transfer. Besides, IF is actively advocating for the rights of people with Spina Bifida and Hydrocephalus and conducting a variety of projects in Europe and in developing counties.

Sophie's Voice Foundation

The Sophie's Voice Foundation is a charitable organization supporting family outreach programs, prenatal education and surgical studies for children and adults with Spina Bifida.

Spina Bifida Association

The Spina Bifida Association serves adults and children who live with the challenges of Spina Bifida.

Spina Bifida Family Network

We are the Spina Bifida Family Network. Among the many things our families have in common is a child who was born with Spina Bifida. Our children are gifted in many ways, yet also face medical challenges throughout their lives. For some, Spina Bifida's impact can be minimal. For others, it can be quite complicated. The SBFN was formed to help families deal with these diversities.

Spina Bifida Family Support

We are here to assist families in providing on-going emotional support, provide practical information and education to families that are raising a child or children with spina bifida. We as parents can utilize our experiences to benefit other families and we can also individually learn how we can better assist our children in their daily lives and prepare them for the future.

Spina Bifida Foundation

The SBF, a not-for-profit organisation was formed by Medical Professionals and parents of Spina Bifida Children who have been involved in the care and upbringing of Spina Bifida patients in India for more than a decade. Since 1997, we have been consistently working for the cause of improving the lives of Spina Bifida patients and for preventing SB.

Spina Bifida HQ

Spina Bifida HQ is a hub for all your educational needs. Whether you are just looking for more information, or needing insight on a specific topic, we want to make your life easier.

Sweetie & me

I'm a 30 something women with spina bifida living in New England with my husband, 2 cats and young daughter. I write about being a mom with a physical disability raising my healthy daughter.

American Pregnancy Association

Spina Bifida is a neural tube defect that affects approximately 3,000 pregnancies each year. Although the occurrences appear to be decreasing, Spina Bifida occurs in approximately seven of out every 10,000 live births in the United States.

Bright Tots

In depth information on signs, diagnosis and treatment of spina bifida.

CDC

Spina bifida is a major birth defect of a person’s spine. With good quality medical care people with spina bifida can reach their full potential. If you have spina bifida, or know someone who does, it’s important to get the facts so that you can make the best possible health care choices.

March of Dimes

Information, fact sheet and resources for spina bifida.

MedlinePlus

Information, research, clinical trials and resources for spina bifida.

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